Volume 25, Issue 118, December 2021

Factors influencing on SCD patient's family and caregivers in Al-Qunfudah governorate, Saudi Arabia

Fawaz Mohammed Alzubaidi^1♦, Salah Bakry², Adnan M Alhazmi¹, Naif Abdullah Almarahabi¹, Hamzah Zain Sulaiman Alsayed¹, Mohammed R Alhayli³, Mohamed AM Iesa⁴, Mohamed A Elhefny⁵

¹Faculty of Medicine, Umm Al-Qura University, Al-Qunfudah, Saudi Arabia
²Faculty of Medicine, Umm Al-Qura University, Makkah city, Saudi Arabia
³Consultant of Pediatrics and Neonatal ICU, Head of pediatric department, ministry of health at South Qunfudah General hospital, Ministry of health, Kingdom of Saudi Arabia
⁴Department of Physiology, Al Qunfudah Medical College, Umm Al Qura University, Mecca, Saudi Arabia
⁵Department of Medical Genetics, Faculty of Medicine, Umm Al-Qura University, Alqunfudah, KSA

^♦Corresponding author
Faculty of Medicine, Umm Al-Qura University, Al-Qunfudah, Saudi Arabia

ABSTRACT

Background: Sickle cell disease (SCD) is a common hereditary haematological disorder affecting millions worldwide. The current study aimed to improve the quality of life in SCA patients by Periodic psychological assessment and early detection of psychological effects, optimizing the patient's and family's adaptation to the illness. Methodology: This study was a survey-based cross-sectional study conducted in Al-Qunfudah governorate, Saudi Arabia. Sickle Cell Disease Burden Interview (SCDBI) vailed questionnaire was used in interviewing the participants. Results: A total of 107 participants participated in the study. The vast majority of the samples have SCA alone 50.47%, with one child with SCA 46.73%. Conclusion: Early discovery of the psychological effect of SCD is the fundamental goal to achieve to optimize the patient's and family's adaptation to the illness.

Keywords: Sickle cell disease, haematological disorder, caregivers, AlQunfudah, Saudi Arabia

Medical Science, 2021, 25(118), 3310-3316

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